Citizen involvement in health tech and the role of ethical principles-based frameworks

Beschrijving

Today, it is impossible to think of health care or research without the use of digital technology and AI-based tools – all of which rely on the use and re-use of the personal data of citizens and patients. The latest proliferation of EU laws stemming the European Data Strategy has led to a complex legal framework to comply with (as developer) and rely on (as citizen). The promise of new policy initiatives is to make more data available for (re)use, while empowering citizens with respect to the control over their personal data. In this respect, citizen involvement is crucial but many questions as regards its operationalization remain open. Ethical principles-based frameworks (such as the Belgian 8 caring technology principles) promise to ensure a central place for the user in the design and development of new technologies.

Programma

Webinar I 02-06-2025 I 16:00-18:00

An interdisciplinary and international panel, including Stefan Gijssels (chair of the Patient Expert Center), Dr. Magdalena Eitenberger (social sciences, University of Vienna), Prof. Tom Braekeleirs (digital medical technology, Ghent University), Gauthier Chassang (law, French National Institute of Health and Medical Research) and Erik Laes (governance of transition, VITO) will explore citizen involvement in health tech development and the role ethical principles-based frameworks could play to foster it (moderation by Dr. Teodora Lalova-Spinks, Ghent University).